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Mississippi Rare Disease Registry

Pursuant to SENATE BILL NO. 2463 of the Mississippi State Legislature, the University of Mississippi Medical Center has been tasked to develop a report concerning the state of rare diseases in Mississippi. The purpose of this registry is to capture a listing of all individuals in the state of Mississippi with a rare disease.

In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people. This definition was created by Congress in the Orphan Drug Act of 1983.

• Listing of rare diseases as designated by NORD’s Rare Disease Database

The information in this Mississippi registry is governed by HIPAA privacy laws and information provided in the report will not reveal the names of any individual. If you have a designated rare disease, please provide your information into the database and answer some basic questions regarding your state of medical care.  

• Join the registry