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Data Requests: Requests for Aggregate Data

Refer to the Mississippi Cancer Registry Online Query System.

If you have questions or need data you cannot obtain through that site, please contact Deirdre Rogers. 

Requests for Record-Level Data (Must have IRB approval prior to submitting the requests):

Documents Needed:

Completed DUA required. Do not use this document for studies utilizing the Virtual Pooled Registry (See below).

Data dictionary for the available data items may be accessed on the NAACCR website.

Steps for Internal UMMC Researchers:

1. Send the completed DUA to Deirdre Rogers, Director, MS Cancer Registry, for review.

2. Once the review and any corrections are completed, you will need to route the DUA and supporting documentation through Cayuse.

3. Once Compliance signs the DUA, the documents will be sent to Deirdre Rogers, Director, MS Cancer Registry.

4. Record-level data sets will be provided to the researcher matching the request.

5. If a linkage is requested, the researcher must then transfer the data file by a secure method such as MoveIT to Deirdre Rogers, MS Cancer Registry Director, for the linkage to be performed. Results will then be sent back to the researcher.

Steps for External Researchers:

Process is currently under development and will be posted here once completed.

Steps for Researchers using the NAACCR Virtual Pooled Registry.

1. Follow the Virtual Pooled Registry process for the first phase of the study.

2. The MS Cancer Registry will accept the DUA template from the Virtual Pool Registry for Phase II.

3. The process for routing the documents at our institution is under development and will be posted here once completed.